Miami

Cuban boy battling rare condition dies after obtaining visa to get treatment in Miami

Damir Ortiz was diagnosed with type 1 neurofibromatosis, a rare genetic condition that causes tumors on nerve tissue

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A young boy from Cuba who was battling a medical condition died on Saturday after he and his family received a visa to travel to South Florida for treatment.

Damir Ortiz was diagnosed with type 1 neurofibromatosis, a rare genetic condition that causes tumors on nerve tissue.

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Ortiz's family confirmed his death to NBC6's sister station, Telemundo 51.

On March 12, Ortiz arrived at Nicklaus Children's Hospital after his family obtained a humanitarian visa.

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It wasn't easy or cheap to get Ortiz to Miami. More than $45,000 was raised in less than 24 hours for his transportation.

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