September is National Sickle Cell Disease Awareness Month. Tens of thousands of Americans are living with the disease, and it is the most commonly inherited blood disorder in the country.
Dr. Lanetta Jordan said every year more than 300,000 children worldwide are born with sickle cell disease, "It's the most common newborn disease that we have and it receives the least amount of attention."
September is dedicated to increasing awareness for the commonly diagnosed genetic disorder. Educating parents like Kemba Gosier, who brought her daughter to the Sickle Cell Care & Research Network just a few months ago.
"She has sickle cell anemia, which is considered to be the most severe form of the disease," said Gosier.
The center bridges the gap between patients and providers by opening the door to more resources. Like many people, Gosier was unaware she was even a carrier until giving birth.
"What we should do is educate ourselves to find out if we are carriers of the sickle cell trait," Gosier said.
Despite the diagnosis, her 26-year-old daughter keeps on smiling, "Most individuals live about 30 to 35 years less than the average life span."
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Frederick Amankwah said he's proof that quality care prolongs life, "When I was born, they told my parents I wouldn't live to see 16. I'm 43 now."
Educating the public, hoping to make an impact.
"Better treatment. Better care. Ultimately a cure," Gosier said.
